Friday, 16 July 2010

Unemployment and non-support Allowance.


Friday 16th July 2010

I am glad that the NHS has a new white-paper which is going to sort out all its ills, introduce, “seamless services,” “bottom up care,” “joined up thinking,” put patients at the centre, etc. Perhaps someone someday will also get round to sorting out the employment and welfare system, oh they are, that is good news!

Got a letter this morning from social security saying that they have received a sick note from me but this will only last for three months, well that is no surprise as it was only written out for three months. They also instruct me: “If you were still sick after 04/10/10 you will have to send another note.”

I’m afraid those tenses leave me even more tense and foxed. It seems they have projected me into the future from a future further on than that.

I have also received a second letter, from “jobcentreplus,” and a mighty thick form about my putative Employment and Support Allowance. I haven’t asked for this and the form doesn’t seem to apply to me, it’s for people who can’t walk or dress themselves and have serious fights in the street.

Some time ago they decided that I was entitled to £9.93 a week, during the chemotherapy, while I cannot do much work. I was glad. That will buy a few bunches of nutritious asparagus, but this new letter says they have looked at the claim again, and I will not be getting it.

They give a detailed breakdown of my claim ending with, “You would have been entitled to ------- £0.00”

On another sheet it says, “because you are entitled to contribution based allowance we will pay you - £9.93”

No idea what I am getting – is it £0 or is it £9.93? It says both in the same letter.

I don’t get out much so it will be exciting waiting to find out!

16/8/10

Receive a letter from “jobcentreplus,” asking why I haven’t filled in the mighty form they sent me, warning that if I don’t complete it I will no longer be eligible for “National Insurance credits.”

I had no idea I was getting them!

Write them an abject letter apologising for whatever it is I have done, or not done, as the case may be.

12/ 9/10

A phone message from my doctor inviting me in as he has to fill in a form for my Employment and Support Allowance, that is apparently still going on somewhere. This is followed almost immediately by another letter from the jobcentre people telling me that I am not getting any money. I have never once asked them for any money – and completely forgotten how I got into this!

Try to explain all this to the doctor. "Just take whatever they offer," he says, as if I am asking for money, which I am not. He is a busy man, doesn't have time for the subtle beauty and serpentine wonder of these things.

21/9/10

Letter from jobcentreplus saying they have paid £59.58 and £0.00 into my account!

Wonder what that is for, was it to do with the doctor and what period of time it covers. Perhaps it is a one off? They don’t say. I won’t enquire – best left well alone.

23/9/10

Letter dated the 20th arrives with this news: “From 7 May 2010 your Employment and Support Allowance will be £9.93 a week.

We cannot pay you as you because you have as much or more money coming in that the law says you need to live on.”

Clear as mud as my mother used to say.

29/9/10

Another missive from jobcentreplus says that they have changed their minds and will now be paying me £41.33 a week, but I am not getting any “more” Employment and Support Allowance. As far as I know I have never received any.

They also say I will get a “Christmas Bonus” of £10!

They will credit my NI contributions “while claiming Employment and Support Allowance.”

They add a form to fill in if I wish to “appeal against this decision.” Hardly likely as I do not understand any of it. If some smidgin of money ends up in the account that will be very nice, I don’t want to investigate further.

Pehaps I will be had-up in the future for claiming money unlawfully. I know that ignorance is no defence, but I will plead utter confusion and I’ve got the paper work to prove it.

Alice in Chemo-land

Chemo is boring, exhausting and a thief of time, but it's also an altered reality. It floats you up to a Venusian landscape were You drift about looking for familiar things, but everything is changed.
It took me four days to pick up after the first chemo, seven after the second. Perhaps this as due to the heat wave but in those few days I felt mad as a snake; exasperated by everything, especially my mother who was unlucky enough to be visiting.
“Chemo hasn’t improved your temper,” she observed. This set off another round of bickering until I fell into a heat dazed swoon.
I go “back to normal,” as if I have eaten a piece of magic cake or drunk some elixir, just a few sips and everything changes back, the whole picture shifts. I go from gloom and gothic darkness where I want to kill everyone and everything, even the cat, to sudden sunlight and tranquillity.
On Wednesday afternoon I lay down to listen to a radio play; one of those worthy, leaden things which seem to have been written by someone from social services as a public service announcement. Dozed off, and when I awoke “it” had happened. I was back to normal. I will now be waiting for this magic moment of transformation throughout the rest of the treatment.

There are a few strange lingering symptoms; coffee, chocolate and alcohol taste too strong, and I feel hungry in the middle of the night. I often lie away thinking about food, longing for breakfast so many hours away, or plotting the meals I will make the following day.
I recently had a go at something called Parmigiana, fried vegetables layered with tomato sauce and mozzarella, baked in the oven. It has the consistency of pasta and oozed with cheese. The memory of it haunts me. I used to fall asleep thinking about men. I remember George Clooney and Jack Nicholson staying interestingly in my mind for awhile after I interviewed them for the Mail, but now I fall asleep thinking about creamed peas and panacetta.
Like many people I am eating to forget about my body, and what might be going on in there.
The only other strange thing is that my feet feel numb, with a low level throbbing. I walk on these strange pads not feeling anything as if my feet have merged into my shoes. If I brush one foot with another, it’s like touching someone else’s foot. I quite like this sensation.
I have no complaints so far because my "good days," seem so special.

Monday, 12 July 2010

Tricky Conversations. Chemo Two.

It’s almost a relief to be back to Garry for my second Chemo – the next one will be number three and that will be half way through. Some say it all gets worse as you go along but I am not listening to anything negative. I have also started plotting my all clear holiday for October.
Get seated into the line of patients’ chairs, accompanied by my friend Kayoko. She manages to get one of the few spare visitor’s chairs which are hard. Happily she is up and about, chatting to people, holding up her hand “healing” people, and snapping away with her camera.
Although there is a line of windows behind us they are all shut.I have decided not to go on with the cool cap, as I am already bald as Max Wall, so I don’t have that cooling aid. It soon gets very hot so I ask a nurse if she can open a window. She says she will but of course, true to nursing non multi-tasking, she doesn’t.
I always seem to be the one piping up while most other people are quiet and passive. I don’t want to make trouble or attract hostile attention. I dread getting on the wrong side of anyone, or being seen as a trouble maker, which is often fairly easy to do.
After an hour waiting for the pharmacy to delivers my drugs a nurse begins to put them into the back of my hand; saline, the two cancer drugs, then Piriton to prevent allergies, which makes me suddenly drowsy.
Some people have been looped up to their drips for several hours already and more seem to be crowding in, drawn from all over the planet; Rumania, Kenya, Sri Lanka, India, the Caribbean.
I chat to a large Cockney woman across from the vast, stygian fish tank. I admire her cropped but highlighted hair and she says it is all down to a good hairdresser. We chat about our symptoms. She says she has had cancer three times and looks a bit pessimistic. I tell her mine was called a “stage 4” at first, but now might be “technically a stage 3.”
“Well that’s terminal that is,” she says, and I see the anger in her large square face with its Desperate Dan chin. Try to quickly shake her words out of my head and retreat to rummaging through my bag of picnic food.
Her sister, also big and burly, turns up and snatches Kayoko’s chair, without a word. When Kayoko returns the sister mutters at her unpleasantly. Somehow we have upset them.
On my other side sat Ann, a small, slender woman in milk-bottle glasses who turned out to be a university lecturer who has written a masters degree paper on “William Cobbett and rural radicalism.”
He was the man who called London, "The great wen," or tumour. You certainly meet a wide range of people under the NHS.

In his great book, “Rural Rides,” Cobbett mentions her great, great, great, great Grandfather, referring to him as, “that old rascal John.”
When Cobbett was in Newgate Gaol for two years for “treasonous libel,” after he protested against some sailors being flogged, Mears tried to extend his farm lease but Cobbett said he would, “rather give my eyes than let that old rascal stay a minute longer,” and he was out by Michaelmass.

Further down the line sat Vera, a beautiful young woman from the Caribbean. She had a full head of dreadlocks and wore an expensive looking diaphanous red gown sweeping the floor. I heard her say to a nurse that she and her husband were going on a cruise, “when all this is over, but we can’t book anything yet.”

I told her I was planning a holiday perhaps in mid October as I would have a scan at the beginning of that month and assumed that all would be well by then. I am having adjuvant chemo, to follow up after cancer has been removed, but as I said this I realised that as she has a tumour on her spine and they are using the drugs to try to shrink it her situation is quite different.

I felt I had said the wrong thing. I was slightly better off than her and it wasn’t right to allude to it, although it was accidental. We agreed that waiting for any scan results is hell.

When her intravenous bags were empty I saw her putting on her lipstick. “Meeting my husband,” she said, probably the only woman in there still feeling the pressure to be attractive for a man. I wondered what that must feel like. Endless varieties of courage are needed in this situation.
Beyond us curled up on their beds were the Indian ladies, groaning, surrounded by their scared looking men. Another way of dealing with this situation I suppose.

Kayoko returned and started talking about her flat, how she had been burgled several times losing almost all her possessions. The police think it is the same person each time, but don’t have the man-power to do anything about it. I said she should put a metal plate in the door.
“I won’t do that,” she said. “If they want to come in and steal they can do it. I accept my fate,” and she made a gesture of twirling her wrist up to Heaven.
This severely irritated me.
“Why did you have a hysterectomy then a few years ago?” I snapped, “And if you get cancer I take it you won’t try to save yourself?”
She looked upset and we gave up talking. Only four more hours of silent dripping to go. Ann went home, replaced by a smiling Asian woman from Wembley who didn’t speak a word of English.

Lots to do before number two.

Lots to do before number two; start the day at Garry waiting in the crowded bit of corridor while the phlebotomist plies his trade, very, very slowly. He did tell me the long wait was the fault of the computer, but I wonder.

He is very young, and looks Malaysian or perhaps from Singapore but apparently describes himself as Spanish. He has hardly any English and his manner bothers me as he sniggers to himself and calls me, “luv.”

“Hello luv,” “Give me your arm, luv,” “Date of birth, luv.”

It sounds absurd and inappropriate. I ask him why he uses that word and he just sniggers and mutters, then carries on with it. Don’t say anything reproving, perhaps because he has to stick a syringe into my arm.

Can’t help wondering why we don’t have a young English phlebotomist and why do we hardly see any English male doctors anymore? A friend who works at the Neurological hospital organising junior doctors’ hours, says that almost all the young medics she sees are English Muslim men. Apparently they, along with some English women, are the ones getting the right grades for medical school. Perhaps English boys just no longer work hard enough.

Got to Ealing in time for the monthly vicarage tea party. From somewhere in the parish Father Bill had acquired half a Victoria Sandwich with white icing and cherries on top. I looked at it greedily – real comfort food. Just what the doctor ordered.

Moving the table outside Father Bill seemed a bit worried by the garden which is overgrown and looks like a hay field.

Someone asked him how anyone could manage to tackle it.

“It will soon have its summer cut,” he said sounding testy and bored. “It gets one twice a year.”

He seemed as edgy as a moulting cat and soon disappeared off to his office to stare at his computer.

His church, St Martin’s, is setting up a “Men’s Group.” This would once have been considered retrogressive but is now rather trendy. I thought I’d give him some amusing gossip about St Michael’s Men’s Group, who usually meet in the Tabard Inn.

They were assigned to provide the food at our summer lunch recently in the vicarage garden. Unfortunately they ran out early leaving a long, disgruntled queue, and had to dash across to Marks & Spencers, happily now open on a Sunday.

Bill wasn’t interested in this bit of gossip and went on staring into his screen.

“The Diocese wants me to find new ways of having church,” he said gloomily.

“This tea party is now church,” he said. “Our Wednesday coffee mornings in the Greek Taverna are apparently a type of church. We are having having a summer fair on Sunday. We’ve never had it on Sunday before as that used to be a special day, but not any more. We’ve got to move with the times.”

Apparently the highlight of the fair will be a chance to throw a wet sponge at the vicar. That seemed appropriate somehow for the way things in the C of E are going.

The French windows in the front room soon filled with elderly ladies. They seemed very interested to see me, showering me with praise for turning up, as if I should be lying in a darkened room somewhere.

“You are so brave,” “So positive!” One of them adds, “My husband was like that. I think that’s why he lasted as long as he did.” He’s obviously not around now.

At the table outside was a smiling middle aged woman with a skimpy top displaying a chest scorched to the consistency of roast chicken, and her husband, a good looking working class man.

He was worrying about their daughter who is a singer with some concerts lined up. For a moment I imagined an opera singer or someone like Charlotte Church. But he said she is going off to Spain to “impersonate Lady Gaga.”

He was even more anxious and upset when a stout German at the table said there was a World Cup match on TV at that very moment, which he was obviously missing.

Klaus sat with his disabled English wife. She had an ugly crooked front tooth stained green and spoke slowly but very loudly.

“Where do you come from?” she asked me. I said I usually go to St Michael’s in Bedford Park. “Well what are you doing here?” she boomed. I said I came along because of my friendship with Kayoko who belongs to the parish but didn’t feel sure that my reason was good enough for her.

She began ordering him to get her tea and biscuits, no please or thank you but he bustled off obediently.

Later he began telling me about a wonderful trip he’d had at the last eclipse of the moon, when he had travelled by train from Moscow, through Mongolia to China and then on to Japan. He said he’d found a way to travel very cheaply in Japan.

“I don’t want to hear about all this,” she suddenly bawled at him. “I want to listen to these other people!”

He glanced at me sheepishly and fell silent.

Couples fascinate me, probably as I’ve never been part of one for more than a few weeks. There always seems to be one person who wins the fight, crushes the other. Not so simple of course, the squashed person probably likes that position, or takes petty revenge and complex but defeatist avoiding tactics.

I realise now that I never had the wherewithal for any of that, hating both sides of the battle. I’ve only realised this clearly since the diagnosis of cancer which shocked me so much and made me really see myself. Standing aside from the “mating game” for the first time in my life, I saw how ill equipped and unwilling I had always been to really play it. This could be the chemo talking – I realise that since I have started the treatment my thoughts have darkened. Not all the time, but in strange bleak patches which descend unexpectedly.

As the day cooled I managed to get on with some painting. I have just sold two paintings to my private collector in Luxembourg and feel encouraged. I have four on the go, self portraits trying to capture the fear I first felt when all this started. Don’t think I have succeeded except in one.

There is also a nude self-portrait showing my hysterectomy scar. I’ll have to turn that to the wall when mother arrives in a few days time. She strongly disapproves of nudity in any circumstances. Even I suspect when she’s alone.

I have been invited to show in an exhibition in September and will hopefully exhibit some of these. The critic Jane Shilling wrote a review in the Daily Mail of my book, Inside, about my experiences teaching in prison, calling it “solipsistic.” She should see these!

Sunday, 11 July 2010

Tides

Tides.

It’s four days since the second chemo. People sometimes wonder what it’s like and I can’t exactly say. The woman I met when I first went to Garry screwed up her face and said she couldn’t describe it and now I know what she meant.
It’s such an odd feeling of discomfort, like being squeezed, stretched, prodded, pinched, stuck into corsets. Joints ache and bones niggle, even in the usually quiet places like coccyx, ankles, shins, toe nails and scar tissue.
There is nausea, wind, constipation, looseness, hunger, but they can all be fleeting, like waves in the wake of a tide of chemicals passing through.
There is fretfulness, restlessness, rage, and a deep seated nastiness about everything, even things once liked. Listened to Summer Lightening by PG Woodhouse on Radio 4, a whole hour of it, but couldn’t follow any of it, and everyone in it seemed vaguely hateful and threatening.
The faces of people I don’t like and all the news I don’t want and financial worries crowd in. I need to note them down like tumour markers in a CT scan, for instant future dismissal from my mind.
Sunday evening sit in the garden in the sunshine, waiting to be served asparagus and salmon with watercress sauce. Cry, then stop crying, then start again. What can I do with myself? The question asked by everyone bathing and bashing about in chemo.

Sunday, 4 July 2010

Excursions in the sun.

My neighbour, a refugee from Liberia, put her large round head over the fence yesterday. She is very handsome with a skin so black it sometimes has tinges of Prussian blue, but this time she looked oddly sallow and pasty. She said she’d recently had an operation and stayed in the Victor Bonney ward, in Queen Charlotte’s Hospital, where I was exactly two months ago.
She has seen many terrible things in her life, including the murder of her parents and grandparents, but the rough treatment she got on old Victor shocked her.
“The nurses were terrible to me,” she said. “So rude, and when I called for them no one came and if they came they were angry.”
I haven’t done much for her either. We live next to each other but I didn’t know she was in hospital and she didn’t know that I had been in there. An acute failure of neighbourliness – typical of London life I’m afraid.
My only constant companion at home is British Gas. For some reason they love me so steadfastly that they must call me almost every day. The last time they rang they said it was, “just a courtesy call,” admitting that they had no reason to contact me except for their fervent desire to be polite to me.
I also get lots of calls from BT asking why I am no longer with them. I can’t answer them honestly as I just don’t remember why I left them, and I have no idea who I employed to replace them. When I tell them this they sound as if they just don’t believe me.
They are more angry with me than British Gas, more hurt and upset, like a rejected lover. I usually feel so bad for them that I ask them to put things in the post for me so I can consider returning to them, but of course they never send anything and I never think about it once the phone is put down.
I normally avoid the heat in London by hiding in doors, but this summer I really have to get out there. I know that I need to see old friends and start going back to all my old places of interest. The only alternative is to stay here indoors talking to Scotsmen on the phone who want to sell me things I don’t need, getting bored, lonely and fat.
The heat in central London, particularly on the tube is not a bad as I remember, as long as you go armed with water, wet wipes, fruit, a book or paper which you can use as a fan if you have to stand, and a lot of patience. I never had that before, perhaps I am cultivating it now.
I am so thrilled to get out that I feel as if I am on holiday in London, something I haven’t experienced since I arrived in 1983.
On Thursday 1st July, met my friend June at Richoux in Piccadilly, where we tucked into Eggs Benedict with bacon, then set off for the Royal Academy Summer Show.
As usual it was a mixture of boring sameness from the established RA’s who take up acres of space, and terrible rubbish from the “contemporary artists” particularly Tracey Emin, who is now being used as a milch cow for the gallery.
Not all of it is dross of course, there are a few gems nestling in there, mainly from the public, particularly in the print room, but I felt disgusted, and doubly so as I didn’t get my paintings in!
I saw a group of teenage boys sitting on the floor staring into space. One of them, aged about fourteen was bald as an egg. I went over and spoke to him, asking if he had been ill, perhaps having chemo? I realised as soon as I spoke hat it was a mistake. He was reluctant to answer me. “Alopecia,” he said quietly. Instead of having a useful conversation I had just embarrassed him in front of his friends. Make mental note not to speak on impulse to any school-child again.
Not as bad as the time in Tate Modern where I offered an unwanted bag of crisps to some teenagers and they looked scared to death. Obviously fear of strangers bearing gifts is as dinned into them as anti-racism and health and safety.

June loved the exhibition and we sat in the Friend’s Room drinking over-priced tea feeling that all was right with the world, apart from the Tracey Emin scribbles all round the walls. It was impossible to get away from her in there.
We intended to go on to the BP Portrait Award but I felt surprisingly tired after just walking round one exhibition.
The following day I braved the heat again to see a film. On the tube to Leicester Square a man shaped like Wibbly Pig sat opposite wearing a base-ball cap and red vest bearing the slogan: “Some people are fat. Get over it.”
That’s honest I thought. “Fattist rights,” another useful instruction from America. As I stood up to get off, I saw that the words said, “Some people are gay. Get over it.”
What a disappointment, and I would never have known if he hadn’t mentioned it.
Arrived at the cinema feeling as if I was going to burst with heat. In the cafe the sofas were all occupied but one very round elderly lady beckoned me over to sit next to her. I sat with a cup of tea wondering if she wanted to talk. She was eating a very large raspberry meringue, two in fact, stuck together with thick cream.
“I am on Weight-Watchers,” she told me getting out a note-book and carefully writing down her calories.
“Not too bad as meringues are very light,” she said. “But I have put on some weight lately as my partner and I have been to Eastbourne, and you know what that’s like.”
My friend Maggie, my oldest friend in London, whom I met in the Morley College canteen in 1983, arrived and we saw a new American film called, Please Give, starring Rebecca Hall, the daughter of old Peter.
It was an excellent film about the problem of charity. The story centres around a middle class couple in NY who buy up the apartments from people who are dead and dying. They sell these off at a higher price. The wife gets worried about the ethics of what she is doing, but not enough to stop. To salvage her conscience she constantly gives to people on the street. She is frustrated that her giving can’t change anything and increasingly at odds with her fifteen year old daughter who wants more giving from her, and her bored husband who strays into a massage parlour.
This film would have been proud to carry the slogan, “some people are fat, get over it.” The daughter is fat, miserable and spotty faced. Not something you often see in American films. Everyone in this one, apart from the mother and one other girl are very odd or ordinary looking. Even Rebecca Hall looks toothy rather than toothsome. It also features people with Downs Syndrome and an extraordinary array of very old actors, not normally seen on screen. One is a vicious old granny who should play the part of Woody Allen’s mother if he ever makes a autobio-pic.
What do these ugly actors normally do for work one wonders? There can’t be much of it about in these glamour obsessed times. But this is the antidote to Hollywood. The modern emphasis on samey good looks is viewed with terrible pessimism. It is also a film about mutability, human frailty and death.
I wouldn’t have gone to see it if I had realised that one of it’s themes is the shortness of life and it touches on the subject of cancer. In fact it begins with some startling photography in a clinic testing women for breast cancer. We see a wide range of banal looking breasts getting the dreaded test.
Horrid granny dies peacefully in her chair, but a very nice grandmother with a devoted grandson gets breast cancer, and we are made to look at the terrible unfairness of fate, which not even Americans with all their hubris can stop.
I saw it as a Christian, but non Puritan film, about battling to be charitable in the midst of advanced capitalism and taking a risk about being exploited. It is about the need to give and the impossibility for most of us of really doing so. It is also about family relationships, people finding each other through patience and holding on to small amounts of faith in each other. As Auden put it, we must love one another or die, we must love one another and die.
The ending was a bit sentimental, when the mother finally understands her daughter and buys her a pair of jeans, costing over $200. But US films always have to have a cop out ending. Perhaps this was an ironic reference to that tradition.
Rushed from the cinema to Earl’s Court to meet my Iranian friend. She took me to a new Japanese restaurant in Kensington. The last time I was there it was Italian.
We talked about world politics and religion, discussed the apparently insoluble problem of Israel. She thinks that the image of The Holocaust protects the Israelis from taking responsibility for their terrible actions. Interesting to think how Hitler is still managing to wreak havoc in the world.
I mentioned to her that at least ten percent of Muslim parents in east London are withdrawing their children from music lessons even though it is on the National Curriculum. The white liberal headmistress interviewed about it on TV said that she didn’t argue with the parents because of “goodwill.” She was only worried because she doesn’t have anywhere to put the children when they are withdrawn from the class.
My friend was annoyed. “So many Muslims are fighting against that sort of thing,” she said, “but we are constantly let down by English people like that head teacher.”
Another friend who teaches Muslim girls in east London says that the parents he knows are not like that at all. I wonder who those ten percent are? Perhaps one small cultural group. We will never know as for the sake of “goodwill” such things are not looked at too closely.

On Saturday morning , 3rd of July, set off again for central London, to see the BP Portrait Award, meeting my friend Melissa who is a sculptor and Ella, a leading Stuckist painter who had been cycling round Germany, with her young daughter on the back of the bike. She had been to Berchtesgaden, built for Hitler’s 50th birthday, which was apparently full of American tourists and brought me back a silk headscarf decorated with Edelweisse.

I put it on for awhile, but it quickly got too hot. As we left Melissa said, “What are you going to do about your hair?” I still have no idea.

At 2pm met my second oldest London friend, the actor Brian Eastty at the Donmar Warehouse, to see The Late Middle Classes, by the late Simon Gray.
Excellent acting particularly by Helen McCrory and Robert Glenister. He is the perhaps more talented brother of the more sexy Philip (DCI Gene Hunt).
“The two of them have decided to divide all the best acting parts between them,” said Brian bitterly.
This wasn’t one of them, a rather dull play. It had its moments, amusing dialogue but didn’t amount to much more than a few clichés about moving from youth to middle age, the loss of talent against the exigencies of life. Heard all that before, nothing new in this.
It was cramped in the circle. I could only see by screwing my head around some pieces of metal but it felt great to be there, living a normal life again, using critical faculties and battling with the remaining white haired middle classes for tickets, ice-cream and a cubicle in the meagre ladies loos.
Visited the food stalls in Covent Garden piazza afterwards. They weren’t there the last time I was up there, a new development. In Boswell’s tea house Brian said what was the difference between cancer returning after five years and someone being newly diagnosed with the condition, was one worse than the other? He didn’t think so. I agreed at the time and felt very up beat.
Got home tired but managed to make myself a fish curry using a packet of spices and ingredients I’d ordered on line. Some of it ended up on the floor and in the bin as I got exasperated with all the chopping, grating and scraping.
Only three days to go until my next chemo - no idea how that will be. If it stays like this it will be fine, so far so good, but it might accumulate and make life different. From now on I will have two sessions a month until the end of September.

Gone Tomorrow

Gone Tomorrow

1st July 2010. On Skype to my Polish friend Ewa, see a tiny image of myself in the top right hand screen and my hairline has obviously receded.
In the shower, dark, wet wads of hair slide out through my fingers, fall into the drain and lie there like dead mice.
Stepping out of the shower I felt breathless with shock and stood in front of the cheval mirror panting, as if I had just run a race, naked, like in a dream.
For some reason the remaining hair on top of my head goes into several large mats and I have to cut them off. Now my scalp really shines through like a little grey crescent moon ceaselessly rising.
The word "Alopecia" comes into my head sung to the tune of "Alouette." It rattles around my brain for hours and sounds quite soothing.
On Wednesday I couldn’t wear a scarf as it was so hot, so I bought a paper Trilby, but realise that I won’t be able to wear that in the theatre or cinema. What will I do, perhaps just sink down in the dark, or more likely just forget the whole thing and go bald. Not at all sure yet what I will do.
At the moment I can cover my bald pate by combing the hair up from the back, another version of the side-ways comb-over once made famous by Robert Robinson the quiz master.
I find hairs wound around my tubes of oil paint like stands of cotton, it falls into the paint getting mixed into the surface. Throughout the day I can feel it coming out in single strands, its stuck in the soap, gets into my face cream, hairs tickle my shoulders and arms, itch down my back, trail along the kitchen floor and I can even see them lying in the cat’s dish.